Desperately Seeking …..Sensory

Iโ€™m not one to moan (well alright, maybe just a little bit) ๐Ÿ™ƒBUT Wow these twinnies are hard work lately!! Me and Daddy Maddog are teetering on the brink of insanity….. so close to being pushed over the edge but somehow we survive, day by day!

All 5 of our kids are extremely Sensory Seeking! Whether it be verbal stimming, high pitch screaming, shouting or physical movement to express themselves. It might seem odd to an outsider but this is what they need to feel good. It’s their outlet so we need to let them carry out most of these actions, not try and stop them completely (within sensible reason of course).

With the little ones ๐Ÿ™ˆ๐Ÿ™‰๐Ÿ™Š ….. the autistic traits are showing through loud and clear now. The constant repetitive actions and movements are wearing. Almost unbearable at times as both twins wonโ€™t take no for an answer. It is is disheartening and so bloody hard but their need to climb is relentless and ritualistic. Bam Bam’s favourite trick is shimmying over the babygate… quicker than a speeding bullet heโ€™s off up the stairs or into the kitchen. We have to lock the front door as he tries to bolt and escape at every opportunity. Heโ€™s a clever little thing and grabs chairs or slides furniture to help him get to where he wants. He gets a leg up on the washing machine and next heโ€™s walking along the kitchen counter emptying the cupboards or climbing inside the fridge. Pebble’s loves stomping around on the kitchen table (with one welly on) and even gets on top of the bureau!! Her favourite lately is climbing up to the tv (on the wall) using a shelf. Then standing up there trying to immerse herself into the picture.

All 3 little ones walk along the backs of the sofa along the window sills, radiators…balancing dangerously on the edge. Our kids have no sense of danger and just crave this constant motion.

We take them down from the high surfaces a million times a day (no word of a lie)!! Repeat the same thing NO but alas they are still non-verbal with no understanding or comprehension of how they could hurt themselves. Their need for sensory input from climbing or being on their head upside down is obsessional …. they need these movements to feel good and comfortable within themselves. From dusk til dawn (literally) ๐Ÿ˜ด

Tornado ๐ŸŒช has many meltdowns a day as He understandably likes his own space, away from the twins. He does interact and run about with them occasionally but only on his terms. He too likes to climb and move constantly from room to room and scaling the furniture etc but he’s not quite as intense as the twins right now.

For Christmas we are getting some equipment to kit out a sensory gym and Snoezelen/Multi sensory Room with lights chill out area.

Snoezelen or controlled multisensory environment (MSE) is a therapy for people with autism and other developmental disabilities, dementia or brain injury. It consists of placing the person in a soothing and stimulating environment, called the “Snoezelen room”. These rooms are specially designed to deliver stimuli to various senses, using lighting effects, color, sounds, music, scents, etc. The combination of different materials on a wall may be explored using tactile senses, and the floor may be adjusted to stimulate the sense of balance. 

We are hopefully setting this up in our garage eventually. Itโ€™s gonna take some doing cause the garage is full to the brim with crap but will be my project for 2020.

We’d love to kit out a proper therapy room to benefit all 5 kids. Iโ€™m talking crash mats, soft play, climbing equipment, indoor trampoline, ball pit, balance beams, spinning/rocking toys and climbing walls, lights, mirrors, fibre optics etc. The works! They deserve it!

This room will help improve our stress levels and help the all of the kids development and sensory needs, even the bigger ones. It will help us manage the behaviours and give them somewhere to focus this energy on and let them climb, balance, hang upside down, spin SAFELY to their hearts content!

However this equipment does not come cheap, especially the lights and effects stuff. Although we have some items arriving as gifts for Xmas. To make this a perfect sensory environment it’s going to take time and a lot more dosh! But the end result will be so worth it and really beneficial to our kiddies development and wellbeing ๐Ÿ˜Š.

Ok so this might be a little bit cheeky but if you don’t ask you don’t get, right?!…….

We decided we might try some fundraising for our little monkeys to help make this happen. We are thinking of starting up a Mad Madden’s Crowdfunding campaign after Christmas! Iโ€™m not gonna beg constantly but would be enormously grateful if anyone could donate to our fund, even a couple of pounds would be amazing! Every little helps as they say. ๐Ÿ˜‰

Thank you for reading and well done if you got through the whole post lol ๐Ÿคช You know I love a good rant!

Till next time

Love L ๐Ÿ˜˜ x

Clap, flap, spin and bounce!

Calm After the Storm

The Meltdown

The sadder side of autism is the frustration and lack of understanding of their own feelings and emotions. Ladies and gentlemen we have the extreme meltdown. Not just a naughty child just having a paddy. Iโ€™m talking an uncontrollable meltdown of epic proportions!! ๐Ÿ˜ฉ

It is a barrage of pent up emotions all fizzed up inside and exploding like fireworks, screaming 10 x as loud but not as pretty.

I watched as the meltdown unfolded….it emerged from the depths of my child almost out of nowhere. All of a sudden BOOM! โœด๏ธ It explodes and Woah Mumma ….this one is a right corker! I am holding back the tears trying to regain some control but I canโ€™t. After an hour of this, with no sign of relenting, I am pushed to the brink of insanity telling myself โ€œItโ€™ll all be good, just give him time to get through itโ€. However Itโ€™s too late for cuddles, distractions, songs, funny anecdotes and silly faces etc. These methods sometimes work to nip It in the bud before it reaches a crescendo. Not this time, itโ€™s too far gone for that. The boy is in full throttle with an huge emotional outburst he and I are not quite sure how to deal with it…..We are at the point of no return and thereโ€™s no looking back.๐Ÿ˜ญ

The screaming squawking, self harming, head butting, scratching and lashing out is heart wrenching to experience and all I can do is try and keep him safe. Sometimes I get caught in the backlash maybe a slap to the face or a punch but I don’t mind, it’s not intentional or malicious and the priority is his safety and welfare.

The expression on his face is pure sadness, pain and frustration. The emotional turmoil he is in upsets me more than words can explain. I canโ€™t help him, I canโ€™t stop these feelings upsetting him…he is immersed within this unpleasant whirlwind and doesnโ€™t know how to cope ๐Ÿ˜ข. All I can do is just be there beside him, not too close yet not leaving him completely alone … just there. โค๏ธ We simply have to ride out the storm together and wait for calm or exhaustion (whichever comes first)

The Aftermath

Now a few hours later I watch him sleep. My beautiful boy, so peaceful after the awful happenings of earlier. Luckily he will wake up and not remember a thing about this. He will carry on being his normal happy, cheeky self, so that is some blessing.

Iโ€™m shattered and keep getting flashbacks of how distressing this particular episode was for all BUT we survived and came out the other side as we always do. x ๐Ÿ’™๐Ÿ’ช๐Ÿป๐Ÿ˜ข๐Ÿ˜Š #autism #asd #awareness #motherslove #wearestrong #warriors #meltdown #nonverbal #feelings #parenting #blogger #sensoryoverload

We survived the school holidays …. just!

Yes I know we’re already a week back to school but it’s been hectic!!! Phew! 2 weeks off school with 5 kids has brought me to the edge of insanity BUT we got through it! Lol We’ve had tears and meltdowns (me and them), squabbling, screaming, fisticuffs and to top it off a fractured toddler elbow!!! ๐Ÿ˜ฉ

Whilst other parents post pictures of their perfectly well behaved children doing something wholesome and outdoorsy every day, I’m a prisoner in my own home. Stuck in the house arguing with the big boys that it’s time to vacate their pit and switch the X Box off!!

The Little ones taking it in turns to cry, shit, sleep, repeat! ๐Ÿ‘ถ๐Ÿป๐Ÿ‘ถ๐Ÿป๐Ÿคฆ๐Ÿปโ€โ™€๏ธ

Seriously I’m at the end of my tether….. I’m not gonna lie these past few weeks have been bloody hard work!!!

My eldest has become practically aggro-phobic and doesn’t want to leave his safe zone at home. His anxiety has reached new heightened levels so it takes hours of persuasion but we eventually try leaving the house for a walk. Nice bit of fresh air in our lungs ๐Ÿพ๐Ÿถ๐ŸŒฒ๐Ÿƒ However as the end of the hols drew closer we did manage to get The big boys out swimming with dad, to a retro gaming cafe (more computers) lol. We hid a few decorated rocks on our walk to then post on Facebook and re-hid them for others to find …..apparently it’s a new craze. Who knew?! For more info See.Portsmouth Rocks UKFinally I braved it and took all 5 to the inflatables session….. which is basically loads of bouncy castles indoors and 30 odd kids running riot! Fun times ๐Ÿ‘

So they did get out and do and few activities eventually.

In other news the twins are teething big time and I am seriously sleep deprived. Getting roughly 3-4 hours sleep a night is not really sufficient to survive ๐Ÿ˜ด Tommy has literally been beating me up out of frustration daily and sometimes quite violently โ˜น๏ธ and in between cuddles But I grin and bear it, heartbreaking as it is. Poor me!

On Thursday the Tornado fell off the sofa (climbing again) so a 10pm little trip to the local treatment centre was in order. We thought he’d popped his elbow out if it’s joint again ….so they clicked it back into place. However this time something wasn’t right, he still couldn’t use it and was dragging his limp arm around like Woody from Toy Story! So next day he had to go to A&E. Finally the doctors find a hairline teeny tiny fracture in his elbow!! Poor little Tornado ๐ŸŒช

However today the sun is now shining ๐ŸŒžand I got 6 hours sleep last night! ๐Ÿ˜ƒ Bonus. I feel normal Service has now been resumed at the Madhouse! …….Oooh and We won on Euromillions last night ๐ŸŽ‰ (a whole ยฃ6.80) but better than a poke in the eye. As the song says ‘Things Can Only Get Better’.

Life will improve soon Iโ€™m certain ๐Ÿ˜Š Gotta take the rough with the smooth and I’llย take whatever life throws at me!

Anyways I’m back in the game now! ๐Ÿ˜ƒ๐Ÿ’ช๐Ÿป๐Ÿ˜˜ I’ve missed my little ranting space. I’m So glad to be back to bend your ears! ๐Ÿ‘‚๐Ÿป๐Ÿ‘‚๐Ÿป

Also to make me feel better I am going ‘out out’ next month …… I’m gonna get shitfaced on jรคger bombs and dance on the tables!! Ha ha! ๐Ÿน๐Ÿฅ‚๐Ÿพ๐Ÿ’ƒ๐Ÿป๐Ÿ˜

Lynne X